This is not a tough day.
This is not a bad week.
This is not a terrible year.
This is one ridiculously, insanely, completely and utterly difficult life.
The life of a grieving parent is one that you cannot possible fathom. You cannot imagine the kind of strength it takes just to get up each day and continue breathing.
I wish this was an exaggeration.
The life of a grieving parent is hard. It is always hard. It is always a struggle.
And worst of all, this life is constantly being misunderstood.
We are being misunderstood. So I'd like to try to explain what it's like.
We are walking a road that we have ended up on unexpectedly and against our will. We were forced into this journey of babyloss. This was not our choice. This was never ever what we wanted. We did not ask for this.
This journey has no end. This journey has no breaks. There are no resting spots. There is no relief, no point at which the heartache subsides, no point at which we can forget the pain or leave it behind. Babyloss is our baggage and it is an unbearably heavy thing to carry around for a lifetime.
Imagine waking up every single morning with the profound understanding that your life is permanently incomplete. Imagine falling asleep every single night with the feeling that life will never be the same as it was before, that life will never be as it should be.
We are desperately missing our children. Our beautiful, precious, irreplaceable, beloved children. They are gone forever. We will never have a chance to hug them, kiss them, rock them, play with them, or watch them grow up. Imagine if you could never hold your children again. Imagine what kind of hole that would leave in your heart.
You may believe that it's possible, even easy, to get over the loss of a baby. You may think that you can't miss a person who you never really knew. You may not understand why losing a baby is devastating and traumatic. But imagine going to a routine ultrasound and being told your baby has a fatal condition. Imagine going into labor, arriving at the hospital and being told your baby has no heartbeat. Imagine experiencing a perfect pregnancy and losing your baby to an umbilical cord accident the day before his due date. Imagine giving birth, holding your baby and watching her die in your arms. Imagine trying to conceive for years, finally getting pregnant and then losing that baby. Imagine being told that you will never carry a baby to term. Imagine wanting a child more than anything else in the world but never being able to raise one here on earth. Can you even begin to imagine the sorrow and pain?
Losing a baby feels unnatural. It is unnatural. It is unfair and cruel and there is no explanation as to why some babies live and others die far too soon. Being told that babyloss is anything but devastating and awful just contributes to our grief and makes our lives so much harder.
If you've never lost a baby, then you have no idea what it feels like. You can try to imagine. You can try to understand. You can show compassion. But you need to know that your ignorance and insensitive comments are hurtful. We don't need you to tell us how to grieve or tell us why we should be okay. You may be trying to help or unsure of what else to say, but honestly, you're just making it worse. We really are doing the best we can to cope and to move forward. But it's so much harder than you think it is.
The day our son was born was the only day we had with him. He died during labor and so all we ever had were a few hours to hold his lifeless body. We tried our best to create memories, something to treasure in the years to come.
We took pictures of him on the day he was stillborn. Those photos are literally all we have left of him. You probably have tons of photos of your children. You probably have lots of tiny outfits, dirty walls, colorful toys, sticky-paged books and preschool projects to show the world that you are a parent.
All I have are a handful of pictures. On the one day we got with our little boy, we took about 50 pictures. By the time he was born, he was already dead. He is dead in the photo of his daddy kissing his toes. He is dead in the photo of me cradling him close to my heart. He is dead in the photo of us holding his hands. You might think these photos are unpleasant or even offensive to look at. But they are all I have to show the world that my child existed. That I gave birth to him. That I am his mother. That he is a real person. That he is more than just a tragic loss.
Nobody wishes we had photos of him alive more than I do. Nobody. But I had no choice. These were the only photos I was ever allowed to take, the only memories we were ever able to make. I am so thankful that we have those photos. They are a comfort to look at and help keep him alive in my heart.
Please know that I am not sharing photos of my son to hurt you in any way. But if you are bothered by photos of my baby, imagine what it feels like for me to constantly see photos of your healthy, living children. Imagine how heartbreaking it is to see your children growing up here on earth, dressing up for Halloween, snuggling up in your arms. My photos may make you feel a little uncomfortable. But your photos remind me regularly of everything I am missing out on. Your photos hurt my aching, grieving heart.
When you complain about your children or your pregnancy symptoms or how hard it is to potty train a toddler, try to keep in mind that there are many many many people who would be willing to give up everything they have to trade places with you for one day. You get to take parenthood for granted. You get to take your children for granted. But please don't. Please cherish every moment you have with your children. Please tell them every day that you love them. And please don't tell me how hard it is to be a parent... because you have the type of life I can only dream about. You have something that all babyloss parents would die for. A chance to hold all of your children in your arms. We will never be able to do that.
This is not a tough day.
This is not a bad week.
This is not a terrible year.
This is one ridiculously insanely completely and utterly difficult life.
It is tears in the middle of the day.
It is feeling helpless and alone all the time.
It is losing friends and family who don't know how to be supportive.
It is being told that our grief doesn't matter... that our children don't matter.
It is questioning all that you thought you knew.
It is missing someone more than you can ever imagine.
It is our children being forgotten by others as if they never even existed.
It is spending our entire lives in mourning while also trying to heal and move forward.
It is struggling to break the silence about a topic that no one wants to discuss.
If you have never lost one of your children, please be grateful for all that you have. Consider yourself beyond blessed and please show sensitivity and compassion to those who have lost a child. Please don't pretend like you know what it's like and that you know how we should feel or act. Please don't minimize our losses. Please try to remember that we have lost so much. That life is unbearable some days. That we so very truly envy you.
And please teach your children how precious and meaningful all life is, no matter how brief or small it may be... so that perhaps one day, grieving parents won't have to feel alone and misunderstood, but rather free to share and speak about their precious babies.
<3